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Global Patient Feedback for Cellcept (Mycophenolate) ( Post a comment )
Question/Comment:
For me the side effects have been horrible. I have severe diarrhea. I have so little energy that I can't walk from one side of the room to the other without resting. Honestly, I felt better when I was still on dialysis. Seek out options if you can. I am insisting on others now.
37 year old Female
Posted: 2008-11-28 11:37:49
Question/Comment:
Find out about any and all side effects.
30 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
TAKE CELLCEPT AS DIRECTED AND NEVER EVER SKIP A DOSE...CAN CAUSE SERIOUS PROBLEMS IF CONTINUALLY SKIPPING OR MISSING DOSES.
37 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Wear a sunscreen every day.
47 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
if you are takeing this after a transplant i would advise that you closely follow your doctors advice because this is a drug or another immunosuppressive you will have to take the rest of your life
60 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
I have had no adverse effects from the medication
64 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
trust your doctor
62 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Make sure you are aware of what it will cost you to take this on a lon term basis.
53 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
It is a lot better than Cellcept. It is a lot easier on your Gastro Trac
55 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Ask more questions before starting taking it. I would like to stop taking but I am not sure enough of the outcome without it. Although I don't think it has changed my symptoms much. I know the doctor is trying to wean me off the IVIG as the reason for taking the Cellcept because I have questioned the continuance of the IVIG as well. The big question will my condition stay as it is now getting off these things or would it get worse again. I am very satisfied with my ability to do what I want now. The first few weeks on the IVIG improved my symptoms greatly. I have read that Cellcept has a black box warning on it but I not sure what that means. I assume that it means it may be a questionable drug but I do trust my Neurologist.
70 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
it has helped my condition to improve immensly
59 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Cellcept is probably the best of the anti-rejections medicines.
66 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
if you want to have a good chance in life listen to your doctor take your cellcept.
46 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Ask your doctor if CELLCEPT will interacr with any medications that you are currently taking.
34 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
seek options if you can, if you are a lupus patient deal with the side effects because there are no other choices
44 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
just to keep taking it even if you feel good
57 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
although the side effects may be irritating cellcept has definitely helped me. My bun and creatinine levels were increasing before I began taking cellcept. The levels improved almost immediately after taking cellcept.
49 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
For MG patients, it beats any other MG drug hands down - including and especially Prednizone. I've gone from 2 to 3 MG attacks a year while on Prednizone (for 14 years) to zero MG attacks in 3 years while taking CellCept only.
64 year old Male
Posted: 2008-03-10 00:00:00
Answer/Reply:
It has made me feel better than I have in years. I have had MG since 11/98. At first I was on Mestinon & Predisone. I still had weakness. Then I was put on Cyclosporine which was horrible. I got an infected Lymph Node and still had weakness. My Dr put me on Cellcept and I feel MG free and don't suffer any side effects. It is very expensive, but with insurance is affordable. While I was between jobs and insurance coverage, I did qualify for patient assistance and received my medicine for free.
39 year old Female
Posted: 2009-01-10 15:34:51
Question/Comment:
it has been very easy and evective for my health
48 year old Female
Posted: 2008-03-10 00:00:00
Answer/Reply:
but does the effectiveness outweigh the side effects. I also hate how markets are capitalizing on this drug..it is way too expensive for someone w/ limited or no insurance (roughly $671). So, how long do you think someone would keep taking this obnoxious drug until they realize the long term costs will be outrageous?
37 year old Male
Posted: 2008-08-26 15:27:29
Answer/Reply:
If you need this prescription, they do have patience assistance for those who can't afford it.
39 year old Female
Posted: 2009-01-10 15:27:43
iGuard.org Answer/Reply:
I pay $1200 a month for a one month supply (180 tabs of cellcept, I take 6 tabs a day total of 3 grams)
Posted: 2009-01-29 07:56:51
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