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Global Patient Feedback for Infergen (Interferon Alfa N3) ( Post a comment )
Question/Comment:
Make sure to rotate your sites.
43 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
yes, each person responds to therapy diferently just hang in there and youll find the lone that works for you
32 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
make sure they take it in the evening before bedtime
61 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Take the drug, it may make a huge difference down the road. It isn't worth the risk of not taking it.
58 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
I was diagnosed 6 years ago have been taking rebif for about 5 of those years and my Dr is very pleased with the result as I am. I have shown very little progression of the disease.
49 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Get over fear of needles
41 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Use the Rebiject II by Phizer instead of just using the syringes it is easier and less painful and more convenient
57 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Stay on the medication, your body will adjust to the medication and remember to take Ibuprofen before you take your injection and take it at bedtime. I have been on it for 4 years and have rarely had any side effects.
43 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
just know that it works but not the same for everyone. But it helps
50 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Dont over react to other people's comments regarding side effects. See for your self and give it some time.
51 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Make sure you understand it takes quite awhile to get used to the injections! Also, it isn't like taking a pill where you notice a dramatic improvement the next day...it takes time to notice that the Avonex is having an effect. I still have symptoms of MS even though I am on the Avonex but I am hoping the Avonex keeps the MS from progressing.
49 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
I take it 2 times a week. I am terrified of each injection, but I know I have no choice. I might be totally disabled if I didnt take them for the last 3 years.
45 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Make sure they have the CORRECT gauge of needle! I had the larger size to begin with and then found out, due to the smallness of my frame, I should have had the smaller needle! Large needle not as sharp, very thick, but LESS painful, than the smaller, shorter, sharper needle! and TRY to relax when the needle goes in! Or get someone else to inject you instead, but STILL TRY to relax! and sit up STRAIGHT!
48 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
I have been feryl happy with Avonex. The number and the severity of exerbations have been very minable since started taking Avenex over 10 years ago.
53 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
discuss with doctor
77 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Start therapy for your MS symptoms and progress, and stick with it! It can be difficult getting used to giving yourself an injection weekly, but look at it this way: worsened MS symptoms everyday--or Avonex once a week? That's all it took for me!
46 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
I take 2 ibuprofen, 2 tylenol 1 hour before injection and also apply ice to injection sit for 2 minutes before injection and then massage injection site with warm cloth after injection to minimize discomfort
47 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Ask your doctor to start you immediately on the medication. Make sure you take someTylenol at least 1 hour prior to the injection.
53 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
Make sure you take tylanol before injection, and I find it best to take before bedtime.
60 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Just hang in until your body gets used to it
44 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
Try diverse times of the day to see which times work best for you. Don't assume that what works for everyone else with work for you
61 year old Male
Posted: 2008-03-10 00:00:00
Question/Comment:
slows progression of disease
68 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
take it with a gran of salt
61 year old Female
Posted: 2008-03-10 00:00:00
Question/Comment:
I take 500mg Naproxen ER with Avonex. It significantly reduces the Avonex side-effects. They hardly bother me at all with it. I just am tired the day after taking Avonex (I take it before bedtime)
26 year old Male
Posted: 2008-03-16 03:26:00
Question/Comment:
Do others have no side effects after taking Rebif most of the time, but then may have symptoms every so often of elevated temp (102), headache, nausea, muscle aches? Tylenol doesn't help me, though 800 mg of ibuprofen every 8 hours for 24 hours after injextion does seem to work. Is this typical?
50 year old Female
Posted: 2007-12-20 22:20:31
iGuard.org Answer/Reply:
I have been on Rebif 44mcg for 4yrs. since I was first diagnosed. I take 1 Aleeve at least 30 minutes before I inject the medicine with the Rebiject II injector. After injecting I go to bed. I have had very few side effects most of the time except for redness & some itching around the injection site for a few days. Sometimes I do experience headaches and tiredness the next day. I do believe, however, the risks of not taking the medication far outweight experiencing some of these somewhat annoying side effects. Hang in there. It has been worth it for me because I've had no progression of the disease. Some of the lesions on my MRI's have become smaller and almost gone. Also, I asked my doctor if Aleeve is better to take than Tylonol or is there any difference because I was concered about the medications & their effects on my liver. He told me that Aleeve is better because it doesn't effect your liver. I hope this has been a little encouraging for you. I also use Aloe Vera Gel with Novacane added to rub on my injection sites right after I take the injection. It helps a little bit with the pain of the injection. Stay on your medication; I know it doesn't work for everyone but talking with your doctor and asking questions is the best thing you can do. Have a good day and take care.
Mrs. Yankee45
Posted: 2009-01-09 11:55:58
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