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Global Patient Feedback for Migraine / Headache ( Post a comment )
Question/Comment:
I was in a car accident in '98 and started to get migraines then. I've seen a ton of neurologists and they said nothings wrong. I had to go to the er 3 times with terrble migraines. Now I'm seeing "the best" neurologist in Central Florida and he has found a cyst on an old mri film but he said not to worry about it. He put me on topomax and Frova. Could this cyst actually be causing these migraines? and is there anthing else I can try other than Frova because I only get 4 pills a month due to insurance. I've tried almost all pills out there.
31 year old Female
Posted: 2008-06-17 20:50:01
Answer/Reply:
I have been seeing a neurologist in Dallas, Tx and he is considered one of the top experts in the migraine field. You might try "Googling" him and read about his pain clinic and lectures around the US as well as in Europe. He specializes in patients with chronic pain from any source (ie., accidents, MS, fibromyalgia, and especially migraines).
People come from all over TX and even fly in from out of state to receive IV treatments to stop the cycle of recurring "rebound" migraines, etc.
He is a caring man passionate about helping people relieve their pain.
Good luck and May God Bless you.
59 year old Female
Posted: 2008-07-27 03:12:51
Answer/Reply:
I forgot to include his name (DUH!):
John Claude Krusz, MD, PHD
He also is in About.com About Headaches:Biograhical Headaches and Migraines
59 year old Female
Posted: 2008-07-27 03:17:21
Question/Comment:
I have had very bad stomach problems as well. The migraine specialist I see has mentioned that they believe there is a correlation between the head and stomach, calling my stomach problems migraine of the stomach/gut/intestinal system. Can you explain this?
46 year old Male
Posted: 2008-06-17 20:47:23
Question/Comment:
I have been having migraines for almost 3 years and have been on Neurontin and Zanaflex and had a MRI that had shown some spots on my brain and still having the headaches, I decided to get another opinion in couple of days. I have a different sharp pain on top of my migraines daily and nothing seems to help. What do you think it may be?
45 year old Female
Posted: 2008-06-17 20:46:03
Question/Comment:
Dr Goldstein
I developed mirgraines following use of M.S. medication Copaxone
i have tried many of the meds mentioned. my migraines are daily! is something more going on?
53 year old Female
Posted: 2008-06-17 20:41:59
Question/Comment:
I've been taking relpax and Frova for a year or two, they are the only ones that worked for me. Now Frova is the only one that works. I've tried everything out there. Relpax doesn't seem to work anymore. Is there anything else I can take other than Frova, so I can have a back up since I only get 4 pills a month due to insurance?
31 year old Female
Posted: 2008-06-17 20:41:58
Question/Comment:
What is your opinion of Butalbital/CAFF/codine
75 year old Male
Posted: 2008-06-17 20:41:56
Answer/Reply:
I am a 28 year old female. I take a form of this drug that contains butabital, acetamenaphen and caffine. The brand name is Fiorcet. It works very very well for me. The only negative is the sedating affect it can sometimes have.
29 year old Female
Posted: 2008-11-19 18:18:40
Question/Comment:
Can I be having a tension and a migraine headache at the same time?
31 year old Female
Posted: 2008-06-17 20:39:32
iGuard.org Answer/Reply:
A patient, generally speaking, with both conditions can have individual tension headaches and individual migraine headaches and tension type headache symptoms that proceed to a definitive migraine and this can be the warning of the migraine headache about to take place. The tension type headache can definitely be a issue along with migraine headaches.
Posted: 2008-06-24 12:08:38
Question/Comment:
I have had some type of headache every day for three months from January through March in two separate years. I am thinking that the headaches may be related to weather or other conditions during these months. I live in OH. Do you have any thoughts? I am on Toprol, Cymbalta, and Topamax as preventatives and Imitrex afterwards.
50 year old Female
Posted: 2008-06-17 20:39:12
Question/Comment:
I had menstrual migraines for years. Now I'm 62. They became more frequent with perimenopause and now with menopause. Daily medications help with frequency and severity, but when will they end, and why haven't they?
64 year old Female
Posted: 2008-06-17 20:36:35
Answer/Reply:
My migranes became less frequent postmenapause over the past 7 years. I still have them, but less severe and they don't last as long. My psychiatrist put me on Topamax and it has been a life saver. Before Topamax I rarely felt any symptoms of the migrane coming on unless it was caused by a tension headache or sinus headache. Now when I feel one coming on I have time to stay in a dark quiet place. Ear plugs have been very helpful over the past 25 years. Also having a quiet fan on to circulate the air seems to help. I also have problems with nausea and dizziness which can be tiggered due to sensitivity to smells.
Dr Christiane Northrup has great insight to women's health and wellness. I learned a lot from reading her book. You can find out more about her on the internet. I wouldn't have figured out that I was perimenapause in my early 30s and that was causing more frequent and severe migranes. Doctors kept telling me I was too young. She gives information on different ways to help get through the symptoms of menapause through medicine and holistic alternatives. Walking and swimming helped me. Also giving up caffeine and soda pop also helped a lot, which also helped me loose weight. I hope this information is helpful. Menapause is different for everyone. Good luck.
52 year old Female
Posted: 2009-03-03 01:47:48
Question/Comment:
I have tried just about all of the Triptans. NONE of them have worked at all. Have you seen this that no Triptans have worked? What other options are there? Also I hear there is a new drug coming out X100 or something like that. Can you tellus what it is and when it is planned to be released?
46 year old Male
Posted: 2008-06-17 20:35:05
iGuard.org Answer/Reply:
Triptans were the miracle of the late 1980's and 1990's. Just because one triptan has failed, does not mean that another will not work. The are admonitions to triptan therapy such as significant heart disease, significant possible allergic reactions and although rare can occur. If you have failure with one triptan, try another. Trexomet has naproxen with Imitrex in the tablet. This may result in better and longer lasting relief. A lot of clinical trials have been done on this combination triptan and it has been shown to be very effective. For people who do not respond to triptans at all, there are other alternatives including ergots, prophalaxysis, and pain medications.
Posted: 2008-06-24 15:06:54
Question/Comment:
I was diagnosed with Migraine 2 years ago. I have been having bouts of exhaustion and brain like fog which I think was part of the Aura for about 5 years now. I was told this is part of the Migraine. I am currently takeing Inderal which has helped significantly with the pain levels and Imitrex for an abortive. I will also take Imitrex when I have low level pain for two long because I am afraid of any damage to the blood vessels as they swell. Is there some other illness that could mimic the signs of Migraine? I know I need to control the amount of medications I can take due to rebound or serotonin syndrome.
Thank You so much
46 year old Female
Posted: 2008-06-17 20:34:58
Question/Comment:
I have only found relief taking 300mg of Topamax a day, however the side effects are so debilitating I have had to back down to 200 mg per day, resulting in frequent (several each week) and strong migraines and tension headaches. Do you have any suggestions or alternate treatments to try?
Thank you!
32 year old Female
Posted: 2008-06-17 20:34:12
iGuard.org Answer/Reply:
Topamax has been approved in prevention of migraine headache. Topamax works well though it is not a primary prevention medicine. Primary prevention medicines in migraine headache that are the gold standards are beta blockers such as Inderal, Metoprolol, and Tri-Cyclec antidepressants such as Elavil and Nortriptyline. Dosages used for prevention in migraine are different then when the medications are used for different conditions. Topamax is very effective but people may experience cognitive problems such as confusion and inability to think correctly. This generally subsides with time and generally is not a problem when appropriate doses are used. The dosing of Topamax should be done very gingerly starting at a low dose level and escalating very slowly. Other medications in this category such as Depakote has proven effective in clinical trials. Complications of Depakote can include weight gain, lethargy, and hair loss. In the new formulation this has been largely avoided. Keppra, an anticonvulsant that has been used in the treatment of migraine headache and this might be a consideration. It has not been as rigorously studied as Depakote and Topamax.
Posted: 2008-06-24 15:05:04
Question/Comment:
I've had very good success using Imitrex over the last 15 years. I'm wondering why this medication is not yet available in a generic form.
62 year old female
64 year old Female
Posted: 2008-06-17 20:33:48
Question/Comment:
What medication is best to use to deal with the sensitvity( Head, scalp, etc.) that accompanies migranes?
57 year old Female
Posted: 2008-06-17 20:33:46
Question/Comment:
I am a 54 year old female migraine sufferer. I have had olfactory auras precede my migraines. These always have come as the smell of raw onions, even though no onions were cut or around. An excruciating migraine would follow this aura. I have not ever been able to find any information on olfactory auras. Would you please elaborate?
55 year old Female
Posted: 2008-06-17 20:33:33
iGuard.org Answer/Reply:
The aura of migraine headache is a neurologic disfunction and can encompass or embody any part of the Central Nervous System. You can have a disorder of thinking, vision, hearing, speaking, as well as disorder of smelling. During the migraine headache there can be photophobia (light sensitivity), phonophobia (sound sensitivity), and osmophobia (smelling bad things or having a disorder of smell). This needs to have preventative treatment and not be treated with acute medications.
Posted: 2008-06-24 12:15:51
Question/Comment:
My wife has been using Imitrex for years for migraines. Originally she was told that there was no risk of rebound headaches. Recently on a visit to a new neurologist, she was told that the risk of rebound headaches was significant. Can you comment on rebound risk and alternatives to Imitrex if headaches are occuring very frequently?
53 year old Male
Posted: 2008-06-17 20:32:00
iGuard.org Answer/Reply:
Rebound headaches can occur with any type of medication dealing with pain. That is the most important point when dealing with these type of medicines. Anything that delivers with pain relief can also result in a rebound phenomenon. It's not just anogesic such as aspirin or tylenol, fiorinal, fiorinal with codeine or even the narcotic anogesics can have the same effect. All of these medications including triptans can result in rebound phenomenon especially if too much is used. If you have taken 2 triptans in 24 hour period and it hasn't worked, you should not take any more. If 2 pills don't work, the likelihood that anything else will be effective in just wiping out the migraine headache pain is low. What is recommend is that people take an anogesic medication such as codeine, vicodin, or hydrocodone along with some sleeping medication and rest up and in most cases the headache will respond.
Posted: 2008-06-24 14:56:16
Question/Comment:
I am now on 125 mgs of depakote twice a day. I have had no relief and actually they have gotten a bit worse. I have been on the medicine for about 6 weeks. I have also gained 10 pounds since being on it. I have been on topamax and almost all other preventives. Where do I go from here? I have also been in so pain for so long and have been taking percocet for the pain. It is not helping at all and i am in huge amounts of pain. What can I have presrcibed stronger than perc to give me some relief?
46 year old Male
Posted: 2008-06-17 20:31:26
Question/Comment:
Let me give you a little history about my self I have in a car accident in 1998, had ct's and mri's done and have been seen by numerous neurologists. None of them have found anything wrong. Since the accident, I've been suffering from severe migraines. I am going to "the best" neurologist in central florida and he has found on an old mri a cyst on the base of my brain by my neck he told me not to worry about it. He has also prescribed me topomax with frova and relpax. My questions are could this cyst that was never located by my numerous old neurologists be the cause of all my migraines? and Secondly is there anthing else I can try other than frova? Thirdly, can I be having tension headaches and migraine headaches at the same time as my migraines feel like both types?
31 year old Female
Posted: 2008-06-17 20:29:35
Question/Comment:
My migraines seem to be triggered by light mostly. Is that rare? And they don't throb. But Imitrex does get rid of them. Is this unusual?
54 year old Female
Posted: 2008-06-17 20:29:17
Question/Comment:
Can you discuss the use of medications in the treatment of chronic daily headache?
53 year old Male
Posted: 2008-06-17 20:27:51
Answer/Reply:
you're having rebound headaches from the use of all your medicines.
31 year old Female
Posted: 2008-06-17 20:34:12
Question/Comment:
I am always looking for newer, safer and more effective treatments for migraine, although triptans do work for me (albeit side effects). I have recently heard that there are new DHE treatments with better delivery systems, such as inhaled or nasal. Please share your thoughts on such treatments. Thank you.
34 year old Female
Posted: 2008-06-17 20:10:30
iGuard.org Answer/Reply:
The most effective form of this medication is injectable. Studies have been done on nasal and oral forms. It appears that the nasal and oral forms just don't work as well as the injectable form. The emphasis on DHE therapy has really been using injections of the medication perhaps twice a day, one milliliter per day if being used chronically. Some patients may require more or less. New research has been done in delivery systems such as inhaled routes which increases the absorption of the medication to almost intravenous levels. Work has also been done with delivery devices that deliver compazine which is an anti-naseua medication used to treat migraine headache in the emergency room and reseachers have been able to obtain blood levels that are close to intravenous administration of the compazine. Those routes of administration are very exciting in terms of getting the medication to the brain in the trigeneral vascular area where migraine headaches takes place. One of the complications of DHE include vasospams which is the closing up of the arteries or veins which is a significant problem but is rare in occurrence and usually subside with discontinuation of the medicine.
Posted: 2008-06-24 12:18:42
Answer/Reply:
i have had migraines since 1972. i've been seeing the same neurologist since 1990. we have found only 2 drugs that work for me: a rescue drug called stadol ns (nasal spray) and toradol, a pill (nsaid). the stadol is highly addictive and the toradol can be harmful to the gi system. but they are the only drugs that work! i've found that the migraines have tapered off since menopause began, about 3 years ago. but, however, they are still as painful, intense and debilitating as ever. i only use them for migraines, never for a headache.
49 year old Female
Posted: 2009-06-26 19:30:25
Question/Comment:
Is there a difference between Relpax and Frova? I used to take both for my migraines but now the only one that works is the Frova why is this? Relpax does seem to work anymore.
31 year old Female
Posted: 2008-06-17 19:59:57
Question/Comment:
I've had migraines since I was about 16 and have been able to diagnose some of the triggers and adapt so that I have fewer a week. However, generally either 24 hours before or after one of my migraines, I'll have a sudden shooting, blinding pain, generally in the upper right area of my brain (my right). It's normally quite sudden and has caused me to black out periodically, but only lasts for at most 5 minutes. My MRI scans haven't shown anything the matter, is this a normal precursor for migraines or should I pursue the matter further? Thanks!
21 year old Female
Posted: 2008-06-17 19:56:34
Question/Comment:
Re: "Natural Flavors": I've been told by my migraine doctor to avoid products containing it as it may contain MSG; noticed recently that Foster Farms ground chicken contains "Natural Flavors and herbs and spices." The customer service rep's answer to "What is natural flavors" is "It's natural flavors." After asking many times, she said the herbs or spices are rosemary extract and that the "natural flavors" were from chicken or turkey broth. Most commercially prepared broths contain msg, but she insisted it was just pure broth from cooked chicken or turkey. The USDA poultry hotline rep. says that "natural flavors" in poultry by law may contain ONLY extracts from herbs and spices, and she named several herbs and spices. What is the real truth here? Is there msg in "natural flavors," and why don't companies list the actual spice or herb instead of "natural flavors"? Thank you very much.
64 year old Female
Posted: 2008-06-17 19:53:25
iGuard.org Answer/Reply:
I've found that I am highly sensative to MSG and the other names that it goes by in the listed ingredients on food packages. If you think you might be too you might want to take a look at this web site www.msgmyth.com/hidename.htm.
I was getting a Migraine headache 2-3 times a week. Right now I am watching my diet so closely. Reading every label and most contain ingredients I can't have. I'm eating so much healthier now, many more fruits and vegetables and I'm shopping at a store that helps reduce the risk because many of their products are organic and don't contain these chemicals. However, many still do even there. The rule of thumb is - If there's even one ingredient that you can't pronounce or that doesn't sound natural, don't eat it until you find out first what that ingredient is and that it's safe.
If I eat something questionable I pay really close attention, so that I know almost immediately if a headache is coming on. Many times if I catch it at that point I can get rid of it with Aleve, within an hour or two and it never gets very bad. I also soak my hands and forearms in hot, hot water for about 10 minutes, which seems to help to. Also, rolling 'Head On' onto my head helps until the medication kicks in. I'm down to 1, maybe 2 a week that I'm able to get rid of within an hour or two without serious medication. I've had some weeks now without any. Each time I've been able to pin point my headache to something I ate. Going out to eat is a big problem. I don't trust any seasonings or flavorings or the oil they use.
I would like to find out why I'm prone to getting them in the first place. Several years ago I was getting terrible pains in my left side. Over a period of 10 years the pain started occurring more frequently, until it was 2-3 times a week like my migraines have been these past few year (never hade these before - but did get sinus headaches). I found that foods that contained MSG (and other such ingredients) were causing me to have this pain. I was poking around on the internet and thought I might have a gallbladder problem. I did. I had a gall stone. They removed my gallbladder and I've never had this pain again.
Recently I had an MRI and so I know I have a sinus cyst. I also feel like I have a lump on the left side of my neck. I would be willing to bet this is causing my Migraines now when I eat MSG ingredients, just like the gall stone did with my gallbladder. I haven't found a good doctor yet to help me figure this out.
They say that even people who don't show signs of being MSG sensative are being poisened just the same. Even if I do find I have a removable cyst or one that can be drained and my migraines go away, I still won't feel comfortable going back to eating the way I did in the past. I sure wish something could be done to rid our food of all these chemicals.
I hope this helps you or someone else. If anyone has any information that they think might help me please email me at: Deborah805@sbcglobal.net
Posted: 2008-08-29 03:27:50
Question/Comment:
I have trigeminal neuralgia and I believe it may be one of the triggers for my migraines. I sometimes have episodes of TN pain that are so severe they break through the relief I usually get from Neurontin. On those days the pain comes in waves throughout the entire day day and into the night and when it lets up I am left with a severe migraine that usually sends me to the ER because of vomiting and dizziness. I am averaging about one migraine a week. MRA and MRI are normal though their is evidence of several small strokes in the last year or so. Can trigeminal neuralgia trigger migraines or is it just an unhappy coincidence? Is there anything out there that I can take for symptomatic relief from the TN pain when it breaks through the Neurontin?
Thank you.
50 year old Female
Posted: 2008-06-17 19:36:33
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