Get Informed: Trileptal
Trileptal Safety Report
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What is Trileptal used for?
iGuard.org is currently tracking more than 2,600 patients that use Trileptal (or similar drugs with the same active ingredient(s)). Use the table below to learn why iGuard users take this product; click on any underlined condition to get information on other medications used for treatment.
| Disease / Condition | % | Average Severity |
|---|---|---|
| Bipolar Disorder | 40% |
|
| Epilepsy / Seizures | 34% |
|
| Anxiety | 13% |
|
| Neuropathic Pain | 6% |
|
| Depression | 6% |
|
| Migraine / Headache | 4% |
|
| Attention Deficit Disorder | 4% |
|
| Other | 9% |
|
How well does Trileptal work?
iGuard.org regularly polls our more than 2,600 users taking Trileptal (or similar drugs with the same active ingredient(s)) using the Treatment Satisfaction Questionnaire for Medications (TSQM) . This feedback is continuously updated in tables below for the benefit of the iGuard community. To request scores for specific patient subgroups, please contact research@iguard.org.
Average Satisfaction Score
(out of 10)
Average Effectiveness Score
(out of 10)
- 76%
- of patients are confident that the good things about Trileptal outweigh the bad things.
- 19%
- of patients wish they were told more before they started taking Trileptal.
Common Side Effects of Trileptal
iGuard.org regularly polls our more than 2,600 users taking Trileptal (or similar drugs with the same active ingredient(s)) to monitor the development and frequency of side-effects. This feedback is continuously updated in tables and graphs below for the benefit of the iGuard community.
54% of patients experience side-effects on Trileptal
8% of patients experience signifcant side-effects on Trileptal
Most Common Side Effects...
-
Drowsiness
-
Dizziness
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Nausea/Vomiting
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Fatigue
-
Grogginess/Confusion
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Mood/Behavior Problems
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= 10%
Less than 1%: Altered Taste, Balance/Coordination Problems, Blurred Vision, Depression, Dry Mouth, Memory/Speech Problems, Numbness/Tingling, Sexual Problems, SUN Sensitivity, Tremor
Global Patient Feedback for Trileptal (Oxcarbazepine) ( Post a comment )
Question/Comment:
I have been taking Trileptal since 2002. The doctor started me on it when I had my first seizure. I only have seizures when I am a sleep, I did have side effects when I first started to take Trileptal. An upset stomach, feeling off balance and having a few ticks. I also started to cough within the first 45 minutes after taking a dose. I have not had a seizure since 2003. I am on 300mg every 4 hours along with Dilantin. I am now starting to get side effects again. Off balance and my hands jumping a little.
54 year old Female
Posted: 2009-09-12 14:00:36
Question/Comment:
HELLO! BEEN ON TRILEPTAL, FOR 5 YARS NOW,AT 300 MG TWICE DAILY,DOCTER SAID IT WAS TO LOW OF DOSE,SO HE DOUBLE IT,OVER NIGHT, I DO NOT TAKE IT ANYMORE,FIND YOURSELF ANOTHER DRUG IF YOU ARE BYPOLAR, I FEEL 100% BETTER, THE DRUGS WAS DELETING THE OTHER MEDS I WAS TAKING,ZOLOFT,TRAZADONE. IT MADE ME SUICIDLE,
48 year old Male
Posted: 2009-06-28 14:01:00
Answer/Reply:
That is very interesting. I am bipolar and that is why I take Trileptal. I take 1500mg a day....a nice dosage. It makes me "high" and kind of drowsy. But I have been on it for 2 1/2 years and the "high" isn't as bad any more. I can function now. I didn't like it at first because I couldn't function because of the drowsiness and "high". I stopped it and found out that was even worse! So, I had to get used to it and it has made a world of a difference! I also take Zoloft, Lybrel, and Mirapex. The only thing that worries me is it decreasing the effectiveness of my BC, Lybrel. But it has been fine so far. Just being smart and staying protected is all you have to do. It doesn't effect my Zoloft or my Mirapex. I have to take a little bit more of the drugs to keep the effectiveness, but that is fine. Trileptal is a dangerous drug that is not good to keep in your system for years and years. But you know what, I am happy and pretty stable and I don't want to kill myself. So, I am happy. I might have to be on this drug for the rest of my life. So be it. At least I will get to live an entire life. Different drugs affect different people. You just have to see what works for you. But when using these dangerous drugs, you must be very aware and very open with your psychiatrist.
19 year old Female
Posted: 2009-09-14 08:54:30
Answer/Reply:
it was the zoloft and the tradone you were taking that made you suisidal not the trileptal, i have been taking trileptal for about 1 1/2 yrs and its the best thing i have taken for bypolar,moooood swingssssssssssss nothing else like it. i got offf it for 3 weeks thinking it was making me crazy etc. but i found out i needed it for mood swings,depressant etc i felt alot better with it.DEE
53 year old Female
Posted: 2009-09-27 05:40:35
Question/Comment:
My 5-yr old grandson's dosage of Trileptal oral was just increased from 5ml to 7.5 ml per dosage (2x daily). He is now experiencing problems with his vision. Is this normal? Will this problem dimenish as his body gets accustomed to the new dosage?
45 year old Female
Posted: 2009-05-06 21:43:04
Answer/Reply:
My son was diagnoised in june of 2008 with epilepsy and is also on the trileptal and he is supposed to take 3mls 2x a day. he was experincing the same symptoms and also could barley stand. when i told our nero doc about it they said it was normal and the side effects would pass and told me to try givin it to him with food. but they didnt and after a month of this i contacted the his pediatrition and asked him he told me no that he shouldnt have that many side effects and he decreased the dosage to 3 ml 1x a day and since then he has been wonderful. i would recommend if the nero doc is not listening either find a new doc or just let the ped doc know that he is havin these problems. i had to switch nero docs 3xs and still dont go see the doc as much. we perfer to see his ped doc instead because he listens. sometimes u really gotta put your foot down with these docs when they dont listen. u and his mother know whats right for him and whats normal for him and some docs jsut look at it like a paycheck.
26 year old Female
Posted: 2009-06-01 20:59:52
iGuard.org Answer/Reply:
Vision problems, including seeing double, are a common side effect of Trileptal (oxcarbazepine) and occur more frequently at higher doses. It is best to find a doctor who is willing to listen and respond to ensure the best care possible for you or the person you care for as it sounds like you have done. Epilepsy that is not controlled could lead to significant problems. You should always consult a doctor before making any adjustments to the medication and ensure the doctor is aware of any side effects that are occurring.
Posted: 2009-06-25 13:28:21
Answer/Reply:
I really do not know if the trileptal affects vision but I will say that my son started it when he was 8 and needed glasses by the time that he was 12. I did not wear glasses then and did not need them but my all family wears glasses and I was the only one that did not. My son also plays alot of video games and computer time so that could contribute also. But now that you ask that question it makes me wonder. I will look in the drug guide at work and let you know take care stacey
37 year old Female
Posted: 2009-06-04 20:02:57
Question/Comment:
MY 3 YEAR OLD SON TAKES TRILEPTAL FOR HIS EPILEPSY. HE TAKES 5ML 3 TIMES DAILY. AND IT MAKES HIM SLEEPY AND NAUSEATED. I HAVE BEEN WONDERING. IS THIS NORMAL?
20 year old Female
Posted: 2009-05-03 11:17:55
Answer/Reply:
I've been taking it for years and do not remember any nausea but one time when the dose was raised, I had several days with dizziness. I don't know how to compare his (I assume liquid) dose with the 1800 mg I take over a days time. It also made me sleepy in the beginning but does not now. In fact, I take the larger dose in the morning and the lighter one at night. Sleepiness, dizziness, & nausea are all possible ' adjustment' effects. How long as he been on it? If the side-effects aren't getting better, tell your doctor. Also, are you monitoring his mood & behavior? Any changes there should be shared with your doctor. I hope this helps.
55 year old Female
Posted: 2009-05-22 16:04:29
Answer/Reply:
MY 13 YEAR OL DAUGHTER TAKES 750MG. OF TRILEPTAL EVERYDAY.SHE HAS BEEN TAKING TRILEPTAL.SINCE MAY OF 2008.THE ONLY SIDE EFFECT SHE HAS EXPERIENCED WAS FEELING SLEEPY WHEN SHE BEGAN TAKING IT.HER NEUROLOGIST ADVISED US FOR HER TO TAKE IT WITH FOOD.HE HAS SINCE TOLD US THAT THE INSTANCE OF STOMACH UPSET WITH TRILEPTAL IS VERY MINIMAL.I HOPE THIS HELPS.I UNDERSTAND WHTA YOU ARE GOING THROUGH.GOD BLESS YOU.
51 year old Female
Posted: 2009-05-22 16:38:43
Question/Comment:
I have a 10 year old niece and a 9 year old nephew who both take Trileptal/oxcarbazepine tablets for anger control/mood stabilization. The nephew has been on 300mg daily for almost 1 and 1/2 years. The niece was on this as well as clomipramine and abilify for mood stabilization it seems to work really well for both of them. They have had no real side effects from this particular medicine.
44 year old Female
Posted: 2009-03-16 17:05:27
Answer/Reply:
I take Trileptal, along with other medicine, but when I take my Trileptal I get "tick like" motions and can't control my motions. I don't know if that is a regular side effect or not. I have been taking it almost 10 years.
49 year old Male
Posted: 2009-03-21 08:38:08
Answer/Reply:
On a low dose like that there should be no problems. I take a maximum dose (1200mg 2x daily) and outside of some limited balance and cognition problems, which I expect will be short term in nature, that have come about since my doseage was increased for seizure control. I hope at that level it will do the job. I haven't experenced any serious side efeects from my larger doses.
63 year old Male
Posted: 2009-04-16 00:51:12
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26
Patient Comments about
Trileptal