Get Informed: Dilaudid

Dilaudid Safety Report

0: On hold

The iGuard risk rating for Dilaudid is on hold. It means that we're waiting for more patients taking this medication to join iGuard before we can provide a more accurate safety assessment of this product.

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What is Dilaudid used for?

iGuard is currently tracking more than 1,400 patients that use Dilaudid (or similar drugs with the same active ingredient(s)). Use the table below to learn why iGuard users take this product; click on any underlined condition to get information on other medications used for treatment.

Disease / Condition % Average Severity
Pain-Generalized 70% 8
Back/Neck Pain 18% 8
Migraine/Headache 8% 7
Neuropathic Pain 4% 8
Fibromyalgia 2% 5
Osteoarthritis 2% 8
Irregular/Painful Periods 2% 8

How well does Dilaudid work?

iGuard regularly polls our more than 1,400 users taking Dilaudid (or similar drugs with the same active ingredient(s)) using the Treatment Satisfaction Questionnaire for Medications (TSQM) . This feedback is continuously updated in tables below for the benefit of the iGuard community. To request scores for specific patient subgroups, please contact research@iguard.org.

Average Satisfaction Score

(out of 10)

Average Effectiveness Score

(out of 10)

69 61
76%
of patients are confident that the good things about Dilaudid outweigh the bad things.
18%
of patients wish they were told more before they started taking Dilaudid.

Common Side Effects of Dilaudid

iGuard regularly polls our more than 1,400 users taking Dilaudid (or similar drugs with the same active ingredient(s)) to monitor the development and frequency of side-effects. This feedback is continuously updated in tables and graphs below for the benefit of the iGuard community.

38%

38% of patients experience side-effects on Dilaudid

6%

6% of patients experience signifcant side-effects on Dilaudid


Most Common Side Effects...

  • 20% Drowsiness
  • 15% Constipation
  • 5% Insomnia
  • 5% Sweating
  • 5% Anxiety
  • 5% Vision Changes
  • = 10%

Less than 1%: Abdo Pain/Cramps, Dryness, Headache, Memory/Speech Problems, Mood/Behavior Changes, Muscle Pain/Cramps


Global Patient Feedback for Dilaudid ( Post a comment )

Comments, Questions, and Answers
Show Newest | Oldest first

Question/Comment:

i am a 19 year old male with constant dislocations to my right shoulder with 13 reoccuring fractures with it. the er doctors give me 5mg dilaudid through an iv with an anti-neausea medication, but when i leave the hospital it seems like the anti-neausea medication wears off before the dilaudid. i get hot flashes, neausea, and i have to take my contacts out because of blurred vision, is there a simple homeremedy to get around these side affects?

19 year old Male – Source: iGuard United States

iGuard Answer/Reply:

Some home remedies are quite effective, such as ginger, ginger ale, saltines, or Coke syrup. However, you can ask the ER doctors or your regular doctor to give you a prescription for anti-nausea medication so that you can take it if you need it at home.

Question/Comment:

I am a 26 year old female with dislocated L5/S1 with severe nerve pain down my legs. I am going to have surgery so my doc took me off the perocets 7.5/325 ASAP 3 every 4-6 hours (to prepare my liver for surgery). I am now on Dilaudid 1-2 2mg pills every 6 hours. I only started yesterday but I don't like them. I feel nausea and am having cramps in my tummy. Also I have been getting the chills and just overall don't feel good. The worst part is that I feel it does not take away my leg pain. With the Perocets I didn't get 100% relief but was able to work and never felt sick. I am thinking about giving it one more day and if does not get any better then I am going to call my doctor and ask for something else. Has anyone else felt this way or does anyone have any suggestions?

26 year old Female – Source: iGuard United States

Question/Comment:

For the last year I've had a Dilaudid Pain Pump and also take 4- 4mg Dilaudid Oral pills per day along with 4-6 Loracet 10mg. This medication seems to have a short metabilsm liffe in your system. What is the highest dose of Dilaudid that the pain pump and oral can be. When i went to the ER last week, they had to give my 10mg of Dilaudid Im before i finally got relief from my spinal injury

48 year old Male – Source: iGuard United States

Answer/Reply:

I have Ehlers-Danlos Vascular Type 4, so I am always in the ER. I weigh 95 pounds and they have to give me the same amount the 10mg or more to ease my pain. You could say I have a very high pain tolerance. I was on the pain pump with all my sugeries. I was on the highest dosage they could give and got it every 6 mins. and got more through I .V if needed. The doctors would say they are giving me enough pain meds for a 300 pounds drug addict. I don't know what the max dosage they can give. But yeah it doesn't last very long. I had some that were delayed release.

28 year old Female – Source: iGuard United States

Question/Comment:

I take Dilandud 8 mgs, I was told that it was the higest dosage that you could take, does anyone know if it goes any higher than 8 mgs. I've been taking it for almost 2 years, and it just doesn't seem to work as long as it used to. I take 2 every 6-8 hours sometimes I have to take more in about 4-5 hours because it wears off that fast, and I just don't want the pain to come back, along with the dilandud I also take Xanax, Ms Conytin, Cymbalta, and Mobic and I guess according to what I've been reading on this website, these shouldn't be taken together because #1 they cause drowsiness, I don't get drowsy but I do once I go to sleep I sleep sometimes until 3 in the afternoon, so they do make me sleep good I guess taking them together doesn't actually affect me until I go to sleep. But being without them, the withdrawal are just unbearable. You can't stand it and no one else can stand you, it just makes you act out of your mind, and the Dilandud along with the Xanx work on your digestive track. I go to the bathroom alot without it, and when I'm off of the xanax not only are my nerves bad I get a feeling in my chest like someone is sitting on me, and it burns so very bad all the way from my stomach up to my throat. I just feel like I can't breathe. So, take your meds like your supposed to because if you run out believe me the withdrawals are worse than the pain of osteoarthritis anyday. I went through withdrawals for about 2 weeks, and I was out of head crazy I had the shakes so badly I couldn't control them, and I had hallucinations bad, plus the pain in my chest that I was talking about. But it's now like the Xanax and the Dilandud aren't helping me like they did, I even take MS Contyin inbetween the Dilandud and the Xanux, but I don't get drowsey, I just sleep too long once I do go to bed, they seem like they keep me awake, taking them together, maybe it's also because sometimes I take them too often, and that's when I run out, but since I ran out the last time I think I learned my lesson, because I don't ever want to go through that ever again. I felt like I should have been in the hospital, but I was hallucinating so badly that I wouldn't go to the hospital I was afraid my husband would leave me in the hospital with the crazy people, you know in the phyc ward, so I just suffered it out until my Doctor got back from vacation, that's why I went through it, she never told me she was going on vacation so for 2 weeks I was in my own pardon the language "Hell". But anyone who has osteoarthritis knows how painful it is, and I just wish I could find something that helped better than what I'm taking so I don't have to take it as often. Does anyone have any ideas? Because anyone who is healthy better thank God for their health, and that they don't have to take any pain medication, because even though your in pain, you do eventually become addicted to the medications. Female 48 years old

50 year old Female – Source: iGuard United States

iGuard Answer/Reply:

There is no maximum dose for Dilaudid. Doses are usually based on how well the patient is responding to the pain management and dealing with side effects. Many of the symptoms that you are experiencing may be in fact due to the withdrawal of your pain and anxiety medications. You may want to discuss with you doctor other options to treat osteoarthritis and be referred to a pain management specialist whom can further help you with pain and withdrawal management.

Answer/Reply:

I feel for you but I have to disagree with you about people eventually becoming addicted! I have Sickle cell disease which if u don't know about it it's like taking your disease and tripling the pain and tiredness. My joints swell to twice it's size and prevents me from walking and sleeping more than 60% of my day is spent in bed. I take Dilaudid, Tylenol #4, Ms.Contin, Atavain, Flexril, and duragesic patches in the hospital. I also on top of all that take Phenagren for the nauseous factor! I don't have any trouble with withdrawls because when my body needs the drugs for the pain it go staight in my body and works for what it's suppose to do! Now when my pain starts to come down from a10 to a 5 and it's bearable. Now if I keep taking the same dosage and then stop cold turkey than yes I might have withdrawls but they are very rare!! So don't lump all the people who depend on these drugs to have somewhat of an exsitance! Well my Dr. Is very supportive with my narcotic use and he knows I don't abuse them. I know a little bit about narcotics being that i have used them for over 25 years. So I don't wanna ever judge someone but it seems like you are taking to much and then not weaning yourself off slowly. Whenever u need to stop, start taking a lower dose and then keep going. That should cut down on the withdrawls! By the way I'm a 32yr old female!
Good luck ever need an ear to listen or advice from someone in about the same boat I'm here!!

32 year old Female – Source: iGuard United States

Answer/Reply:

I am so glad to hear of others taking Dilandud and wonder what is going on with our bodies as we take it. I take 2 every 3 to 4 hours, plus I have a Morphine Pain Pump inplanted in my spine that runs 24 hours a day. And they refill it monthly. My pain started from having cancer treatment and the treatments made my bones so to mush. Which with the brittal bones and the osteoarthritis, and during the cancer, which I have have 4 times in the last 15 years. I should of been dead, if I would of went by what the doctors told me. But I have fought it and keep on going. There were times the pain was so bad that I could not walk and was in a wheel chair, made it out to a walker, and now just a cane. And sometimes, or good times, walk a short time alone. I also take Ativan because my condition causes such anxiety from the pain and just dealing with it. And I have high blood pressure and so I take two medication's for it. When I take my pain med and the ativan , it does relax me enough to let me sleep for maybe 2 to 3 hours at a time. But with my spine pain, I can't stay in one spot for very long. A lot of the time I sleep sitting up or laying back slightly on the couch. I have tried every medication to repair my bones, or they promised they would, but they don't. But I think that has a lot to do with that I am on cancer treatment of one or the other the rest of my life to keep it from spreading so fast or taking over any more organs. I would love to hear from others on pain meds, because when I was in a moving transition from one town to the other they got my appointments messed up and my pump ran out and I went thru withdrawal so bad, that they had to put me in the hospital and give me meds thru and IV for two days, plus get my pump re-running, before my body got caught back up. It was horrible, I thought I was going out of my mind. My partner, which I was lucky, stayed by my side and got the treatment I needed, or I think I would of gone crazy. The pain and body jerking was horrible. I don't know how drug addicts do it time after time. If anyone else besides the one posted would love to talk about pain meds or medical condition's similar to mine, I would love to talk to them. You can email me directly at : rhydonna@att.net. My computer had become my lifeline. I wish the best of luck to the poster and your dosage is not the highest I've ever seen. The doctor who does my pain pump and meds, is a Pain management doctor. If your's isn't a specialist in this area, FIND ONE who is. It makes a big difference, and even with the one time of my pump going down, it's worth it to have it, because then I don't always have to take the pills, then my stomach isn't such a mess or no appetite. Take care and if you ever have question's about what the doctor's tell you, find another and ask question's. But please find a Pain Management Specialist. I have to drive a hour and half to mine each month, but it's worth it. Best of luck to every one. GOD BLESS..

50 year old Female – Source: iGuard United States

Answer/Reply:

I know exactly what your going through,sounds like your life is so consumed with pain and taking meds to help alleviate it.I have walked in your shoes for many years.and am no stranger to withdrawal or Dr's. treating you like a drug addict.Well I have been suffering with Chronic Back Pain for 19yrs. and it has only been the last 5yrs.after having a morphine pump implanted do I have my life back. I take 8mgs. of dilaudid for breakthrough pain only and it really does complement the morphine. I really feel for you, but you have to try to cut back on some of the drugs your taking. Your "killing" yourself.You have to accept the fact you may never be completly pain free again have to live with a certain amount. Save the drugs for extreme pain only,and join in with life again.You are missing so much. I am a 57yr. old female, and I can honestly tell you I don't remember any of my 40's .So many yrs. wasted.It is not to late for you

59 year old Female – Source: iGuard United States

Answer/Reply:

I am also a Sickle Cell Anemia Disease patient that was prescribed Dilaudid 8mg. I have pain almost every day and when I have a SCA Crisis,I would rather die than to continue in this crisis (Unbearable constant PAIN). The most harmful problem I expierence is the DOUBT that a lot of the Doctors and Nurses portray! Although other middle eastern,dark skinned people can get Sickle Cell Anemia,mostly African American people in the US are burdened with the Medical Field Unbelief!! Since I was 16,most doctors that worked in the ER of the hospital I went to did not believe me and thought I was drug seeking and not really sick! I told them I did not come for narcotics and was willing to try any non-narcotic they had for pain relief! Demerol was the med that helped me stop the pain more than any medication! I prayed that soon the Doctors would educate themselves on Sickle Cell Anemia Disease so that they won't think we just want drugs! I now have a group of doctors that believe SCA patients and try to save our Quality of Life! Some doctors try to study and help us find a cure so that others won't have to go down that same road we had to go!!! Duragesic patch,Procrit,Valium and Hydrea helps me lenghten my LIFE by doing exactly what the doctors and the Directions on the bottles before taking them. TYJ

46 year old Male – Source: iGuard United States

Answer/Reply:

I happened to be ready your comment and know how you felt. I have Ehlers-Danlos Vascular Type 4 and I live in a very small town. The doctors here have never heard of it and so they don't believe it. I would give the CD that the EDS foundation gave me to give them and no one would even look at it. I found one doctor and she just moved out of state. I am always in severe pain and have had to learn how to function with pain. My surgeons are all 3 hours away and so it is a long drive for every pain.

28 year old Female – Source: iGuard United States

Answer/Reply:

Hello'I am a 48 year old male and I have suffered with cronic pain for five years now and have experienced all the same things as you have described.If you ever run out of your meds and your doctor is away go to urgent care and they will give you enough to last you untill your doctor is back.If you find that your painmeds are not working as well as they should you should ask your doctor to switch you over to somthing else like duragesic because we do build a tollerance to the medacation over time and you have to switch them up every now and then. Also you have to be honest with your doctor and ask to have your medication increased so that you can better deal with the pain.And remember your not alone and yes the pain and withdrawl are hell but take your meds as often as you need to and try to hang in there.wishing you all the best.L.

49 year old Male – Source: iGuard United States

Question/Comment:

I am taking neurontin and paxil and hazar and miraplex along with dilaudid and hydrocodone,do any of these act against the other.

84 year old Female – Source: iGuard United States

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