Get Informed: Ulcerative Colitis
1 in 730 Americans have Ulcerative Colitis
iGuard is currently monitoring more than 2,445 patients with Ulcerative Colitis from around the United States as shown on the heat map below. These figures suggest that roughly 0.41 million Americans have Ulcerative Colitis with women being 2 times more likely to be affected than men.
< 21
21-39
40-59
60+
Age (Years)
Medications used for Ulcerative Colitis
Drugs commonly taken by iGuard.org users for Ulcerative Colitis are listed below, together with the percentage of patients that take each drug.
|
Commonly Used Medication Name* (Hover mouse over name to see medication class) |
% of Patients | Average Risk Rating | Has Generic Available |
|---|---|---|---|
| Prednisone | 51% |
|
Yes |
| Pentasa | 29% |
|
Yes |
| Remicade | 8% |
|
No |
| Carafate | 6% |
|
Yes |
| Imuran | 6% |
|
Yes |
*This list is NOT EXHAUSTIVE - Only drugs used by a sufficiently large number of iGuard.org users are listed.
**Medications are sometimes known by different brand/generic names, depending upon how they are packaged or used.
Global Patient Feedback for Ulcerative Colitis ( Post a comment )
Question/Comment:
I Hope this helps someone. In 2007 I had such bad UC I couldn't leave my toilet much less my house, my symptoms were so bad. Anyway my daughter-inlaw who has IBS told me about the medication her doctor put her on, and it was helping her. So I requested it from my doctor even though it's not for treatment of UC, I wanted to try it.
Robinol Forte tablets 2mgs (1) three times a day.
It took maybe 2 weeks and all my symptoms were gone, and have not had a flair up since 2007
61 year old Female
Posted: 2009-09-27 14:04:34
Question/Comment:
I was on sulfasalazine for many years, then moved to colazal and 6mp. None of it seemed to prevent flares without boosting with predisone every time i'd flare which would average once a year and last about 3-4 months.
I started remicade recently and it has been amazing. In the first two weeks the flare I was in was gone and I haven't felt any symptoms since. We're almost going on a year now. It's a infusion (like chemo) that you get every 8 weeks. I had trouble staying on top of taking three different types of meds between 2 and 5 times a day and this is much easier. There are some things to be aware of with it but I'd talk to your doctor about it! It's been amazing for me. The first thing that's truly made UC not a daily part of my life.
28 year old Male
Posted: 2009-07-09 14:43:51
Question/Comment:
I feel like my doctor is not aggressively treating my ulcerative proctitis. I have had 2 colonoscopies over the last 2.5 years and both have shown mild inflammation around to the rectum. My symptoms include rectal bleeding, constipation, occasional diarrhea (once every 2-3 weeks) and most troublesome stomach pain / pressure.
Once I was diagnosed my doctor put me on colazal (750 mg) and it did help for about a couple weeks.. but soon after my symptoms came back. I then put on canasa rectal suppositories for 3 months and my symptoms varied, but I had rectal bleeding and stomach pain at least 3-4 times a week. About a week ago my doctor finally gave me rectal steroids, and the results have been somewhat mixed again. I go one day without bleeding or discomfort, but the next day it comes back.
My question is twofold. One, Should I be worried about developing cancer or any other conditions because my proctitis has not been in remission? Second, do I need to find a doctor who will treat this condition more aggressively?
29 year old Male
Posted: 2008-08-26 18:15:06
Answer/Reply:
Ulcerative proctitis is hard to get rid of, the last really horrible bout of it that I had, it took 3 rounds of rectal steroids of 2 weeks each round to get rid of it. Be patient with the rectal steroids, they will work eventually. However, if you have been diagnosed with UC, you will have flare ups. When you least expect them and when you definitely don't want them. I had it for 17 years, then had a complete proctocolectomy with ileostomy done in Feb of 1999. I felt better before I was even completely awake after the surgery! Cancer is a definite factor for patients with UC, but you won't get it quickly, the risk factor for colon cancer in UC patients goes up every year that you have the disease, your doctor can tell you what the exact rate is. At 17 years of active disease, I was at ABOUT 30%. TALK to your doctor, MAKE him listen and answer your questions!!!! They don't slow down long enough to ask you if you have concerns sometimes, but just remind yourself that YOU pay HIM!!!!
52 year old Female
Posted: 2008-12-06 21:33:15
Answer/Reply:
I have the exact same symptoms. I am using Lialda which I take evryday. I have been on Prednisone 3 times in the past year. I clear up but then about a month later after I am done with the Prednisone it comes back. I am currently using the Canasa and have been giving Hydrocortisone(liquid). I have not used it long but hope the symptoms will stop.
I feel the same about my doctor and will be seeking a second opinion. She will not change the Lialda (pills) and said I may have to take Humira. That means I will have to give myself shots. No way can that be the only option.
I would suggest getting a second opinion.
29 year old Female
Posted: 2009-06-09 12:45:50
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Patient Comments about
Ulcerative Colitis